Day Twenty-Two

Friends, Music & Mother Nature

Our dear friend Ashley has started joining us for lunch on Thursdays between PT & speech therapies. Ada loved Ashley singing for her today and later they shared a reciprocal musical conversation that moved Ashley to tears. Music is so healing and universal!

Ashley has also been sharing lessons about the Igbo language of her Nigerian descent.  I love learning about cultures and I feel like Ada’s fairy ways are like learning a foreign culture. As Ashley explained her sense of deep rooted culture that creates such strong family bonds it made me hope that as Ada’s family we represent and share her ways in a manner that allows her to feel just as strong of a sense of belonging & honor.
  On our way to pick up Willa we stopped quickly at our friend Jeanne Buckholtz- Lewis’s amazing spot, A Fare to Remember @Home to get some yummy food AND her beautiful brand of lovin! As she greeted us it made me think of an insight Ashley shared about w


hat makes true friends of ours so special. She said that they understand that to fit into our lives it must be on Ada’s terms and that is OK and not to be apologized for. That level of acceptance for a PMS fam like ours is everything!!
  After getting back home Ada spent a long while outside with one of our loving home health aides, Kristen Gulakowski.  As Ada let chickens out, ran around & swung she got to enjoy the view of woods, the crisp air, the warmth of the sun, and the singing birds. Nature provides such rich sensory experiences that sooth & enrich. #PMSF #PMSFAus #PMSFUK #foreverFriends#PhelanLucky #OneIn5Million #WorldofMae #ThisIsUs #ThisIsPMS #5k #treehuggers #hartwoodacres #PhelanMcDermidSyndrome #fairystrong #RideTheWave #KapowGrashow #protector #LeanOnMe #heartsong

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