Chewing/mouthing are common with Phelan-McDermid and hair is a close and easy thing to grab and get in so we always need to be careful to have Ada’s hair out of her face. I often get a headache from ponytails so always having Ada’s hair tied up worries me that it maybe causing her discomfort. So today I decided to just start chopping!
Ada also really has a difficult time with the process of brushing/combing/fixing her hair so moving towards lower maintenance is always a good thing.
This photo isn’t great and I trimmed a bit more after I took this but I think she looks so grown up! The best part was is that it really seemed like she was looking at herself in her mirrors …checking out her new do! She expressed happiness with what she saw;)
#PMSF #PMSFAus #PMSFUK #mamabear #DisabilityRights
#PhelanLucky #OneIn5Million #WorldofMae #ThisIsUs #ThisIsPMS#PhelanMcDermidSyndrome #fairystrong #RideTheWave #KapowGrashow#protectors #LeanOnMe #fairyqueen #newdo
World of Mae 