Day Twenty-Five: Fairysteps


Usually during Ada and Jon’s weekly grocery trip Ada rides in the buggy…this weekend guess who walked hand in hand the entire time?! Way to go Ada Mae! Jon said she navigated through the store like a champ;)

Phelan-McDermid makes gross motor very challenging. Ada learned to walk at two…lost that ability at 4.5 and then again at 5.
Tonight as I helped her walk down stairs she’s unfamiliar with it took her forever for her foot to venture down to the next step it’s not just a physical challenge…for Ada it’s also cognitively and psychologically really difficult.

So we stay loving and supportive wherever the functioning may land and know that her smile is a hell of a lot more important than a step but when we get both that’s icing on the cake!

#PMSF #PMSFAus #PMSFUK #mamabear #DisabilityRights
#PhelanLucky #OneIn5Million #WorldofMae #ThisIsUs #ThisIsPMS#PhelanMcDermidSyndrome #fairystrong #RideTheWave #KapowGrashow#protectors #LeanOnMe #theseBootsWereMadeForWalking

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