Written St. Patrick’s Day, March 2017
Following text from a fellow fairy mama: Chrissy Turnock Kaiser…xo!!
~~Today above all days is important to the Phelan-Mcdermid Syndrome community. Only 1500 (in the WORLD) have the diagnosis so we band together to get the word out about our kids. I truly believe that there is someone out there that will see this and help us get closer to a cure.
How can you help? Share my post. Post your own Phelan Lucky photos (even if you don’t have a shirt!). Read about the syndrome: www.22q13.org
It isn’t easy being special needs parents but it is easy to love Mason and his determination every day. 🍀~~
Cheers to the spirit and sweetness and raw beauty Ada and her PMS brothers and sisters bring to this life. We are so very lucky to spend our lives with Ada, our magical, courageous, and clever teacher! #ForAda